For US Healthcare Professionals Only
For Healthcare Professionals
Clinical ALS Resources
We've developed a comprehensive suite of ALS resources in multiple formats to help you educate your ALS patients and empower
them to understand and manage their symptoms.
Clinical ALS Resources
We've developed a comprehensive suite of ALS resources in multiple formats to help you educate your ALS patients and empower
them to understand and manage their symptoms.
ALS Patient
Resources
Resources
ALS Patient Education to Prepare
Your Patients for Their Journey
Explore and learn about a range of informative patient tools and resources below.
ALS Pathways Webinars
Educational webinars featuring an ALS expert sharing his perspective on topics many patients and caregivers may want to learn more about.
Educational webinars featuring an ALS expert sharing his perspective on topics many patients and caregivers may want to learn more about.
ALSFRS-R Input Tool
An interactive tool that allows you to input a patient’s individual ALSFRS-R score and generate tips and management strategies based on the symptoms. Results can be shared and discussed in office or downloaded and distributed to patients.
An interactive tool that allows you to input a patient’s individual ALSFRS-R score and generate tips and management strategies based on the symptoms. Results can be shared and discussed in office or downloaded and distributed to patients.
ALS Pathways Patient Podcast Series
Practical information for patients on a variety of ALS-related topics that can be streamed or downloaded via a computer or mobile device. New episodes are added regularly.
Practical information for patients on a variety of ALS-related topics that can be streamed or downloaded via a computer or mobile device. New episodes are added regularly.
Getting Started Brochure
A resource guide for patients recently diagnosed with ALS. It includes information basics, tips to help monitor and learn about strategies for living with ALS.
A resource guide for patients recently diagnosed with ALS. It includes information basics, tips to help monitor and learn about strategies for living with ALS.
Keeping Track of Healthcare Providers
A template for patients to write down and store contact info, instructions, and next steps from multiple healthcare providers.
A template for patients to write down and store contact info, instructions, and next steps from multiple healthcare providers.
Educational
Webinars
Webinars
An Expert's Point of View for Patients
A doctor with years of experience treating ALS helps educate patients by offering insights on loss of function associated with ALS and how clinical trials play a role in ALS treatment.
An ALS Expert's Perspective on Assessing and Slowing the Loss of Function in ALS
An ALS Expert's Perspective on The Clinical Trial Process
Patient Podcast
Series
Series
A Different Way to Hear About ALS
The convenient, multipart ALS Pathways Patient Podcast Series covers a range of ALS topics, from the science behind ALS to tips on managing and monitoring symptoms. There’s also useful information to help inform caregivers and loved ones for what’s ahead.
Patients can stream or download these free audio files using their smartphones, tablet devices, or desktop computers. Each episode varies in length. Podcasts are a great way for patients to receive practical information at home, on the go, or wherever it’s most convenient.
Patients can stream or download these free audio files using their smartphones, tablet devices, or desktop computers. Each episode varies in length. Podcasts are a great way for patients to receive practical information at home, on the go, or wherever it’s most convenient.
- ALS: The Basics00:21:00Welcome to the ALS Pathways Podcast Series. In this podcast, we’ll discuss the basics of ALS, including the history and science behind the disease. We’ll review different groups of ALS symptoms and learn about tests used to track and monitor progression.
- Managing ALS00:27:49As ALS progresses, you will be faced with important decisions about your health. In the second podcast, we’ll review important strategies to help navigate your disease, including the importance of working with a multidisciplinary care team and tips for managing common symptoms.
- Life as a Caregiver00:25:25Are you a caregiver for someone with ALS? Learn about caring for a loved one throughout their ALS journey and, just as importantly, caring for your own physical and mental health.
Upcoming episodes include conversations with multidisciplinary specialists and people with ALS.
Make sure to inform your patients that new episodes are updated regularly.
What Other Topics Should We Add?
Feel free to give us feedback on the ALS Pathways Patient Podcast Series or suggest a topic you’d like us to cover in the future.
Offer Your Patients Symptom-Specific
ALS information
ALS information
Offer Your Patients Symptom-Specific
ALS Information
The ALSFRS-R Input Tool may help provide your patients with tips and information about a range of ALS symptoms.
After you’ve administered the ALSFRS-R scale with your patients in office, input their scores below for each activity of daily living (by typing them in or using the arrows) and click submit.
After you’ve administered the ALSFRS-R scale with your patients in office, input their scores below for each activity of daily living (by typing them in or using the arrows) and click submit.
Input Each ALSFRS-R Score Here
FORM INCOMPLETE
| BULBAR |
Speech |
Salivation |
Swallowing |
| GROSS MOTOR |
Turning in Bed |
Walking |
Climbing Stairs |
| RESPIRATORY |
Dyspnea |
Orthopnea |
Respiratory Insufficiency |
| FINE MOTOR |
Handwriting |
Cutting Food |
Dressing and Hygiene |
Find an overview of each ALSFRS-R score here.
Results can be shared and discussed in office or downloaded and distributed to patients for review on their own.
The ALSFRS-R scale
The ALSFRS-R scale is a validated questionnaire-based instrument for evaluating a patient’s physical function in performing activities of daily living (ADLs).1 Today, the ALSFRS-R scale is a widely used test in clinical trials to monitor ALS and is considered the gold standard measure for tracking disability progression.2,3
Learn more about the ALSFRS-R scale.
The ALSFRS-R scale is a validated questionnaire-based instrument for evaluating a patient’s physical function in performing activities of daily living (ADLs).1 Today, the ALSFRS-R scale is a widely used test in clinical trials to monitor ALS and is considered the gold standard measure for tracking disability progression.2,3
Learn more about the ALSFRS-R scale.
References: 1. Cedarbaum JM, Stambler N, Malta E, et al. The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. J Neurol Sci. 1999;169(1-2):13-21. 2. Berry JD, Cudkowicz ME. New considerations in the design of clinical trials for amyotrophic lateral sclerosis. Clin Investig (Lond). 2011;1(10):1375-1389. 3. Eisen A. Motor neurone disease. In Turner MR, Kiernan MC, eds. Landmark Papers in Neurology. 1st ed. Oxford, United Kingdom: Oxford University Press; 2015:264.
